MS Trust CEO David Martin has a message for the MS community.
I want to make a promise to you and the rest of the MS community.
For the last three decades, the MS Trust has built its reputation on providing the most trusted information about multiple sclerosis to help people with MS live the best life possible.
Ever since Jill and Chris started the charity 27 years ago, prompted by the vacuum when people were diagnosed with MS, information has been our bedrock at the MS Trust.
Now the stakes have just increased. While there are still lots of unanswered questions about the Coronavirus epidemic, for the 130,000 people with MS, the uncertainty and fear is far more significant. Last week record numbers of you contacted us through our enquiry line, social media channels and by visiting our dedicated Coronavirus pages on the MS Trust website seeking information and support.
You have trusted us at every turn over the last three decades. We know how much you value what we do. We are grateful you have put your faith in us. In these surreal, uncertain times we will continue to payback that trust, delivering services to support you.
The MS Trust’s office is now closed for the foreseeable future. We are all working at home. But, if anything, we are doing even more to ensure the MS community is well informed. I have never seen such flexibility and determination as I have from the MS Trust team over the last week.
We are doing everything we possibly can to bring you all the information that you need about MS and the Coronavirus and the facts that help you make your decisions about your lives. We are talking to experts for you. We are reading all the scientific knowledge we can get hold of on your behalf. And we are listening to people living with MS about what you need from us too.
In the days and weeks ahead, we will have three top priorities: We will continue to ensure that our website is regularly updated with clear, authorative information about the Coronavirus and MS. We will ensure that we keep the vital MS Enquiry Line open, so that we can answer each and every query as comprehensively and efficiently as possible. And we will continue to listen to those of you who follow us on social media too (in our Facebook group, on our Facebook page, Twitter and Instagram) where many of you are already asking crucial questions, giving us valuable insights and inspiring us.
It’s a big responsibility. We don’t take it lightly. We will do our absolute best.
This message from one of our friends with MS suggests how we can continue to make a difference.
“My anxiety has increased a little but your updates have helped keep things in perspective and I am very grateful to the team for this.
“You’ve given me something that I’ve been trying to get from people for the last week and that is a clear answer. No ambiguity and while you’re not making decisions for me you made it much easier for me to make them."
My promise to you and the wider MS community is that we will continue to give you all the facts and information you can trust in the clearest way possible until this Coronavirus crisis is done.
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In May 2022, Lis will be heading off on her 5,000 mile cycling challenge. She shares how the idea came about and discusses why the support of the MS Trust was invaluable following a multiple sclerosis diagnosis.
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