MS research webinar
What is it like to be part of a clinical trial in MS? Which clinical trials are currently recruiting and how can you get involved? Take a look at our webinar where we talk to two experts and one person currently taking part in clinical trials, as part of our MS research webinar.
Guest speakers:
Alasdair Coles, Professor of Neuroimmunology at the University of Cambridge
Klaus Schmierer, Professor of Neurology at Queen Mary University and Barts Health NHS Trust
Faisal Sheikh, person with MS who has previously taken part in a clinical trial
Several resources and links were mentioned during the session, you can find these listed below:
Getting involved in a clinical trial
https://mstrust.org.uk/research/getting-involved-research
https://clinicaltrials.gov/ is a site where current trials are listed.
How MS research works
https://mstrust.org.uk/about-ms/ms-research/how-ms-research-works
Latest research updates
https://mstrust.org.uk/latest/research
Specific trials discussed in the webinar:
Chariot MS
www.chariotms.com
If you are interested in finding out more about the Chariot MS trial contact chariot@qmul.ac.uk
Recruitment for attack MS is starting in June 2022 contact attackms@qmul.ac.uk for more details.
Octopus trial
https://www.mssociety.org.uk/research/explore-our-research/research-we-fund/search-our-research-projects/octopus
Star MS
https://mstrust.org.uk/a-z/star-ms-trial-hsct-ms
The Cambridge centre for myelin repair
If you are aged 25-50, have RRMS and are on a DMT, you may be suitable for the Cambridge trial, please contact me on: neuroscienceCCTU@addenbrookes.nhs.uk
You can register with the MS Register here https://ukmsregister.org/
Other webinars in the series
Fatigue and MS webinar
In this webinar we discuss with experts how fatigue is best managed in everyday life. We will also hear from people with MS to find out how fatigue affects them, including Wheelchair Curling Paralympian, Hugh Nibloe.
Exercise and MS webinar
This MS and exercise webinar hears from health professionals and people living with MS, about the positive role that exercise can play in life with MS. It includes useful tips on how to stay as active as possible, at a level that suits you.
Work and MS webinar
What workplace rights do people with MS have? This video shares practical advice to prevent you from having to give up work before you feel ready and we hear personal experiences of a person living with MS.
Webinar FAQs
How much do the webinars cost to attend?
All of our webinars are free to attend but if you would like to make a donation to help the MS Trust continue to support people affected by multiple sclerosis across the UK, you can do so.
Is there a limit to the number of webinars I can sign up for?
Our webinars cover a variety of different subjects so you are welcome to sign up to as many or as few as you would like.
How long will the sessions last?
We expect each webinar to last about an hour although timings are not exact.
What will I need to be able access the webinar?
To get the most out of our webinars, you will need an internet enabled device such as a desktop computer, laptop, tablet or smartphone. A stable internet connection is also required to allow easy access our webinar platform.
How can I join the webinar?
When you sign up for any of our sessions, you will be automatically sent a placeholder calendar invite via email.
As MS Awareness Week approaches, keep an eye on your email inbox as we will be sending out links to allow you to access the webinar platform around a week before the event.
I can't find the link. What now?
Everyone who signs up for a webinar will receive an email link no later than one week before the event. If you can't see an email from the MS Trust, please try checking in your spam or junk folder.
If you have checked your spam and junk folders and are still unable to find an email containing the link, please email comms@mstrust.org.uk.
Will other people be able to see or hear me when I join the session?
The platform we will be using ensures that no one will be able to see or hear you. Only the arranged speakers and hosts will be shown and heard by attendees.
Can I ask questions?
We welcome questions and there will be the opportunity for you to ask these at the end of each session. Your webinar host will be able to provide further information on how you can submit any questions, during your session.
I signed up for the session but can no longer attend. What should I do?
We understand that plans sometimes change. If you are no longer able to attend a webinar, please let us know by emailing comms@mstrust.org.uk.
I want to attend the session but am unable to make the time/date. Is there anything I can do?
We will be recording each of the webinars to ensure that everyone who wants to find out more about any of the topics covered can do so. All of the recordings will be available on the MS Trust YouTube channel after MS Awareness Week so make sure you subscribe so that you don't miss out!
These topics aren't relevant to me. Will the MS Trust be hosting any other webinars in the future?
At the moment, we are only planning to host five webinars for MS Awareness Week. The topics of these have been decided upon as a result of feedback from the MS community and questions we frequently receive to our Enquiry Service.
If you would like to find out about any future MS Trust events and stay up to date with the latest news from the MS community, you can sign up to our mailing list.
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