Limbo land - what you can do while you wait for an MS diagnosis

28 May 2024

Waiting for a potential multiple sclerosis diagnosis can be daunting. In this episode, we explore the "limbo land" time during your first appointments and a possible MS diagnosis.

Neurologist, Dr Emma Tallantyre, joins us to talk about the importance of reaching out to your healthcare professionals, managing stress and more!

We discuss the roles of neurologists and the tests you might go through. Plus, we cover some top tips for preparing for each appointment and what to do next.

Listeners will gain a deeper understanding of the diagnostic journey, treatments, and the value of support from healthcare professionals, family, and friends.

Listen now for expert advice, personal stories, and community support.

Episode notes

Worried you have MS? - information from the MS Trust
What is MS? - information from the MS Trust
Waiting for your first neurologist appointment - information from the MS Trust
How is MS diagnosed? - information from the MS Trust
Newly diagnosed - information from the MS Trust
MS Trust A-Z of MS
Contact the MS Trust
Diagnosing MS - Lumbar puncture YouTube video
Diagnosing MS - Evoked potentials tests YouTube video
Diagnosing MS - MRI scan YouTube video
Dr Daniel Matterson's Instagram

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Limbo land - what you can do while you wait for an MS diagnosis

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What is MS?

Multiple sclerosis (MS) is a neurological condition that causes damage to the nerves in your brain and spinal cord, also known as the central nervous system or CNS.