Podcasts from the MS Trust | MS Trust

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Our podcast brings together a range of voices from the MS community to cover all aspects of life with multiple sclerosis. We know that living with MS can be life changing and can feel overwhelming at times. That’s why we’re here with you at each stage of the journey.

Look, we know that we don’t have all the answers. But our podcast’s aim is to bring you the most up to date, trusted information from experts across the MS space including neurologists, therapists and researchers.

Plus, hosts Helena and Nick hear real-life experiences from the MS community and find out your tips, tricks and the things that make you tick. We pose your burning questions to our experts and find out the information that you really want to know.

Listen now for helpful information on symptoms, treatments, updates and a whole lot more.

This is a lovely podcast which has provided me with very useful and welcome information in a lively and well produced format.

Apple Podcasts review

Find Breaking it down: A multiple sclerosis podcast on all major platforms

Who we are

Helena

Hi, I’m Helena. I’m originally from Sweden, but I’ve lived in the UK since 1999. In 2007, I was diagnosed with multiple sclerosis. I work as a Digital Production and Content Officer at the MS Trust. I joined the charity six months after my diagnosis, as I wanted to raise awareness and empower others with MS.

One of my favourite parts of my job is doing the podcast. I love talking to people with MS about their stories, as no two people with MS have the same experience. I also enjoy speaking with our topic experts about how we can help people live their best lives with MS.

Nick

Hey, I’m Nick. I’m a Digital Marketing and Content Officer at the MS Trust. I don’t live with MS, but my wife does. I know I’ll never know what it’s like to live with MS. But I live alongside it, and I’ve seen firsthand the highs and lows that my wife has faced.

I’m always really interested to hear stories from the MS community. Plus, I’m curious about all the latest symptom management strategies and information that we find out from our guests. I always learn something new on our podcast and I hope you will too.

Available episodes

How can I manage my MS bladder problems?

In this podcast we talk to MS specialist nurse, Grace Hazlett, about bladder treatment options, preventative strategies and practical advice. She gives us the low down on pelvic floor exercises, fluid retention, catheters and more!

19 February 2024

Mind Matters: Looking after your mental health with MS

Living with MS means you might hit some unexpected mental health turbulence at times. In this podcast we chat to Professor Derek Willis. He tells us how being kind to yourself can unlock new perspectives in life. Plus, he outlines some practical strategies for managing the expectations of others and taking healthy breaks.

29 January 2024

Can mindfulness really help with my MS?

Can practising mindfulness actually help you manage life with MS? Mindfulness teacher, Justin Standfield, lives with MS and he joins us to dispel a couple of mindful myths. Plus, he shares some practical ways that he manages his own MS symptoms using mindfulness.

Your most asked MS questions in 2023

What have the MS community been asking about this year? We interview Corinne from our helpline team who tackles the burning MS questions and trends that our service has encountered in 2023

18 December 2023

How do you get the best out of your MS Nurse appointment?

If you’re not sure how to best prepare for your next MS Nurse appointment, this could be the podcast for you. Our guest, MS Trust Lead Nurse Specialist, Dr Lou Jarrett explores some helpful tips on how to best prepare for your appointment.

27 November 2023

How do you get the best out of your neurologist appointment?

Feeling overwhelmed and anxious at the thought of discussing your MS with a neurologist? Wondering what questions to ask and what you should bring? You’re not alone. We caught up with MS Trust Ambassador, Dr Agne Straukiene, to set out some strategies for making the most of your neurology appointments.

6 November 2023

How does smoking affect MS?

Ever wondered if smoking affects your MS? Sure, we all know the health risks linked to smoking. But, does smoking cause multiple sclerosis progression? And will your MS symptoms improve if you quit smoking? We dive deep into these questions with consultant neurologist, Professor Richard Nicholas. Plus, Caroline Smith, who lives with MS, talks us through the steps she took to quit smoking.

16 October 2023

How common are breathing difficulties in MS?

Multiple sclerosis can affect breathing in advanced MS. But breathing problems can begin at any stage with MS. To explain more in this podcast we talk to Rachael Moses who is a Consultant Respiratory Physiotherapist and Neuro Physiotherapist Jody Barber.

27 September 2023

What you told us about MS and mental health

This is a recording from a live stream we did earlier with the Head of Information and Engagement at the MS Trust Claire Winchester, we chat to her about a report called “Life changing: mental health and MS". In this report we find out about what the MS community in the UK has to say about mental health.

4 September 2023

How can I improve my sleep when I have MS?

Sleep problems are more common in people with MS than the general population. Around half of people with MS say they experience disturbed sleep. In this episode we talk about some common problems and some potential ways to improve your sleep.

What happens when you treat MS really early? We learn about the AttackMS trial

Diagnosing MS can be a lengthy procedure, and getting on a treatment path can take even longer. So what happens when you treat potential MS really early? In this episode, we talk to Professor Klaus Schmierer about the AttackMS trial.

Getting to grips with using a mobility aid

Have you been told to consider using a stick or wheelchair, but don't think you're ready for it yet? We talk to neuro physio Laura about helpful mobility aids, and how to change your perspective on using them. We also check in with Hayley who uses mobility aids and is passionately advocating their importance

Related content

Questions about MS?

Call our free helpline on 0800 032 38 39 for practical information you can trust. Or email ask@mstrust.org.uk. We're here weekdays from 10am to 4pm, except bank holidays.

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