Podcasts from the MS Trust

Most people with MS receive their diagnosis during their working life. This episode covers what working life is like when you have multiple sclerosis. We discuss what rights people have at work, what to do when you feel like you have to give up work or reduce your hours, and much more.

MS is a condition affecting the central nervous system. In this podcast episode, Simon from our information team gives a MS 101 lesson, covering topics such as how MS is diagnosed, who gets MS, and much more. We also chat to Hugh Nibloe, a Wheelchair Curling Paralympian who lives with MS.

Volunteer Will returns with another peek behind the scenes. In this episode Will chats to the MS Trust information team about the questions they get asked, and the work they do to ensure everyone with MS can access the treatments and services they need.

Fatigue is one of the most common symptoms of multiple sclerosis and people with MS often find it had to explain fatigue to others so in this episode we ask how you would describe life with fatigue and what tips you would give for managing it. Plus, occupational therapist, Kate Hayward, shares some of her own fatigue management techniques.

Will returns with another episode taking a peek behind the scenes of the MS Trust. This time he talks to MS Trust CEO, David Martin and Chair of Trustees, Caitlin Sorrell to find out more about how the MS Trust supports people with MS.

Menopause is the hot topic at the moment. In this episode we talk to Neurologist Ruth Dobson about how and why menopause and perimenopause can affect multiple sclerosis. We also catch up with Hettie, who talks about how menopause affected her and her MS.

To start the year off, we caught up with MS Trust CEO, David Martin to ask questions like, "How is the MS Trust different to the MS Society?". We're also joined by Volunteer Manager, Mark to hear about what volunteering opportunities are available in 2022.

In our last podcast of 2021 we speak to Dr Nikos Evangelou about how cold temperatures affect people with MS. We also share some of your thoughts and real life experiences of cold sensitivity.

For many people with multiple sclerosis, relapses are a big part of the condition. In this episode we discuss what relapses are, how to recognise if you're having a relapse and how to deal with them. We also hear from MS Nurse Miranda Olding about what causes a relapse and how they are treated.

We discuss the 'hot topic' of HSCT for MS, hearing from Claire in the Information team about the criteria for receiving stem cell transplantation. Our guests also include Chris who was eligible for HSCT on the NHS and Gwen who went to Russia to seek treatment for PPMS.

Guest presenter and MS Trust volunteer, Will, returns to our archives. This time, he looks at the role Pharmacists play within an MS service, what support they offer and the latest drugs in development for people with MS.