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Image
Gwen

My journey to Russia for HSCT

Gwen was diagnosed with primary progressive MS (PPMS) in 2009. Here, she talks about the experience of travelling to Russia for HSCT and shares some advice for others.
Real story
Image

My personal journey with HSCT

Chris Wasey gives his account of what it’s like to receive HSCT (stem cell transplant) on the NHS and the impact it had on his MS.
Real story
Image

“MS has made me look at my life and think about what’s important”

As BBC defence correspondent, Caroline Wyatt was used to being a stone’s throw from some of the world’s most dangerous war zones. But nothing could have prepared her for the daily battle that is MS. Here, Caroline tells us about adapting to life with MS, her experience of stem cell treatment, and her hopes for the future.
Real story
Image

Home improvement agencies (HIA)

Home improvement agencies (HIA) are locally based, non-profit organisations offering support for people making adaptations or improvements to their home. Find out more in this A-Z entry.
Information - A-Z
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Conference poster exhibition

Poster exhibition 2023

Guidance on creating a conference research poster to show how you have generated evidence or improved services for people with MS.
HP - Event
Image

Patient information for DMDs in childhood MS

Patient information paragraphs for disease modifying drugs in childhood MS. POMS DMDs used in the UK.
Information - MS information
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Direct payments

Direct payments are paid by your local council to people who have been assessed as needing care. These can give you more flexibility over how your care and support is provided.
Information - A-Z
Image
Information

Phenytoin (Epanutin)

Phenytoin is an anti-convulsant drug that works on the brain and spinal cord. Its main use is in epilepsy. In MS it can be used to treat trigeminal neuralgia or other painful sensations (dysaesthesia) if other approaches have not worked.
Information - A-Z
Image

Bexarotene

Bexarotene was investigated in clinical trials for its potential to repair myelin. The dose required led to serious side effects and further studies were not conducted.
Information - A-Z
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Multiple Sclerosis Trust

Spirella Building, Bridge Road, Letchworth Garden City, Hertfordshire, SG6 4ET

Call: 01462 536007

Email: hello@mstrust.org.uk

Charity number: 1088353

Registered as a limited company in England and Wales: 4247766

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  • MS information & support
    • About MS
      • What is MS?
      • Types of MS
      • Causes of MS
      • How common is multiple sclerosis?
      • MS research
      • Newly diagnosed
      • Young people and MS
      • Living with advanced MS
    • Symptoms & diagnosis
      • Worried you have MS?
      • Signs and symptoms
      • How is MS diagnosed?
      • What's causing my symptoms?
      • Managing relapses
    • Drugs & treatments
      • How is MS treated?
      • Disease modifying drugs (DMDs)
      • MS Decisions
      • Drugs in development
      • Treatment finder
      • Non-drug therapies
    • Health & wellbeing
      • Thinking and memory problems
      • Staying Smart
      • Exercise
      • Diet and MS
      • Wellbeing
    • Family, care & money
      • Relationships and family life
      • Care and carers
      • Home and travel
      • Work, money and legal
    • Support & services
      • Contact our MS helpline
      • MS services near me
      • My MS expert
      • Order a free MS publication
      • Listen to our podcast
      • Join our Facebook group
      • Find support groups
  • A-Z of MS
  • What we do
    • About us
    • Who we are
      • Our story
      • Our directors
      • Our trustees
    • Our research and reports
    • How we are funded
    • History of MSRTE
    • Contact us
  • Get involved
    • Donate
      • Donate to the MS Trust
      • Make a donation
      • Make a regular donation
      • Donate in memory
      • Other ways to donate
      • Gift Aid
    • Fundraise
      • MS Trust Exclusives
      • Do it your way
      • Trekking and walking events
      • Running events
      • Cycling events
      • Daredevil events
      • Fundraise while you shop
      • Get your fundraising guide
      • Pay in your fundraising
    • Raise awareness
      • Bring Your MS to Work
      • World MS Day 2026
      • MS Awareness Week 2026
    • Volunteer
    • Leave a gift in your will
    • Corporate fundraising
      • Corporate giving
      • Payroll giving
      • Pharmaceutical and other industry supporters
  • News & stories
    • Latest news & stories
    • Keep up to date
      • Sign up for updates
      • Update your address
    • Send us your story
  • For health professionals
    • Resources
      • Clinical learning
      • Professional development
      • Service development
    • Courses & training
      • Funding your learning
      • MS Trust conference
      • Development Module
      • Study days
      • External courses
    • Therapists in MS (TiMS)
      • About TiMS
      • Meet the TiMS working group
      • TiMS resources
      • TiMS newsletters
      • Join the TiMS network
    • Order publications
    • Latest
      • Latest news for HPs
      • Keep in touch
      • MS in Practice
    • Programmes
      • Advanced MS Champions programme
      • Case studies
      • MS Forward View
  • Shop