We’re only one day into MS Awareness Week and already we can record it’s been a great success. Last week we set ourselves a target of reaching 1,000 sign ups to our Heart of MS Care campaign by the end of this week. As of this morning we can report that over 1,100 of you have joined us – so you’ve helped us beat our target, with four days to spare!
Of course we’re not stopping there, and with your help we hope to reach even more people – whether they have MS themselves, whether their friends or family are affected, or whether they are MS health professionals.
By adding your voice to our campaign, you’re helping spread the word about the importance of MS specialist services, and the fact that too many people in the UK still can’t access them. Thanks to your support we will be able to work even harder to make sure everyone affected by MS can receive the best possible care.
Some of you have mentioned on social media that you’d like to see more coverage of MS in the media. We share your frustration! We’re a small national charity, and we’re committed to spending the funds you raise on producing quality MS information and improving MS services – so we have almost no advertising budget. And it’s always difficult to get MS onto the news agenda, but it’s especially difficult during the run-up to a general election.
But yesterday, and on Sunday, our Director of Service Development, Amy Bowen, spoke on BBC radio about why we’re campaigning. We hope to receive more coverage later in the week.
We’re always after volunteers to help us spread the word and raise the profile of MS. If you’d like to get involved why not drop us a line, with a few words about you and your story? We might ask you to speak to a radio reporter, appear on TV, be featured in a magazine or write a blog post, as and when we run particular campaigns or receive media requests.
Of course, when talking to the media you need to be wary. Reporters sometimes try to sensationalise people’s experience of MS to make a more dramatic story. This happened to Chloe who took part in our Making Sense of MS campaign last year.
And if you’d prefer not to speak to the media, it’s easy to spread the word online. See our range of infographics and videos you might share. And if you’ve got an MS specialist who’s made a difference to you, why not share your story in our social media communities on Facebook or Twitter?
The ADAMS project
25/05/2022 - 00:00
Dr Benjamin Jacobs spoke to us about a new study on the genetics of MS in people from minority ethnic backgrounds which may eventually shed light on why MS can be more severe for Black and Asian people.
Roxy's journey to diagnosis
16/05/2022 - 00:00
Roxy talks about her MS journey and the importance of sharing her own experiences to ensure that others don’t face the same challenges when receiving a diagnosis.
Lis' MS journey: one woman and her bike
04/05/2022 - 00:00
In May 2022, Lis will be heading off on her 5,000 mile cycling challenge. She shares how the idea came about and discusses why the support of the MS Trust was invaluable following a multiple sclerosis diagnosis.
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