MS Awareness Week 2025

MS Awareness Week 2025 runs from 28 April - 04 May. We're once again working with other MS charities to encourage everyone to have MS conversations.

We know that people in the MS community often find conversations about multiple sclerosis difficult. This might include talking to friends, family, colleagues or health professionals. Well, we're here to say, you're not alone. This MS Awareness Week, we're working with the MS Society, MS Together, MS-UK, Neuro Therapy Network, Overcoming MS, Shift.ms and Talks with M.S. to shine a light on conversations and why they're important.

Together, we want to get people talking and sharing. Let's hear about those really tricky conversations, those chats that you wish you'd had earlier and the ones that supported you. It's good to talk ...

Want to get involved? We'd love to hear from you! Use #MSConversations on social media to start the conversation.

Resources

Talking about your MS can feel daunting. In the run up to having challenging conversations, you might feel worried or fearful. You might ask, 'Will the other person understand?' or, "Is it even worth telling them what's really going on?"

We know how common these feelings are, and that's why we're here with helpful resources to support discussions about life with multiple sclerosis. Explore our range of resources to help manage conversations with friends, family, co-workers and health professionals. Plus, find out where you can talk to the MS community.

Head to our A-Z of MS to find support for any aspect of life with MS.

Visit the A-Z of MS

On this page

Telling people about your MS

This booklet answers the most commonly asked questions about discussing your MS with other people in your life, such as family members, close friends and work colleagues.

Telling people at work that you have MS

This booklet guides you through disclosing an MS diagnosis at work. It provides a template to share your experience and symptoms with your employer.

How to explain fatigue to others

How do you explain this difficult invisible symptom to someone who doesn't have MS? We help you share how it feels.

Support groups

There is an ever growing range of social media groups, blogs, forums and discussion groups where people with MS can share experiences, make connections and ask questions.

Telling people about your MS

When you have just been diagnosed with multiple sclerosis, you will need to think about who to tell, when to tell them and how much to tell them.

Talking with friends and family

MS can affect personal relationships in many ways but it need not interfere with developing and maintaining connections with other people, including friends, family, partners and work colleagues.

Speaking with children and teenagers

MS affects not only you, but those around you as well. When is the right time to discuss your MS with your children? How should you open the conversation?

Working life

Find out more about how to explain MS to employers, legal rights under the Equality Act, and how to take care at work.

Support MS Awareness Week

A gift today goes towards trusted information to support difficult conversations and a caring voice at the end of the phone when you need answers to your MS questions.

Donate this MS Awareness Week

Get involved

We'd like to hear about your experiences of MS conversations. From the ones that were tricky to the ones that made you feel supported, we'd love to know more. Why not share some helpful tips for others in the MS community? By raising awareness and promoting the importance of having conversations, we aim to help people feel heard and empowered

We will be sharing these stories in MS Awareness Week using the hashtag #MSConversations. Get involved and share your story on social media using the hashtag.

If you'd be interested in sharing your story publicly, please contact comms@mstrust.org.uk

Download our awareness pack

You can download a pack of resources, including our posters and social images, to share with friends, family, colleagues or followers from our online shop.

Download free awareness pack

About the MS Trust

We're a UK charity dedicated to providing expert support. For every MS, for every day. Find out more about what we're doing to support people with multiple sclerosis.