Aqueela

This case study is an example of specialist knowledge and intervention by Lindsay Lord, Salford.

Aqueela has highly active Relapsing Remitting MS and is experiencing recurrent hospital admissions for pneumonia. They have been declining additional holistic support. They have been deemed to be at high risk of pressure sores, due to lack of turning from home carers. Other symptoms include urinary problems, constipation, spasticity, ataxia, cerebellar signs, early dysphagia, dysarthria and refusal of PEG. 

• Aqueela is 32 years old and was diagnosed with highly active relapsing remitting MS when they were 20 years old. They have been treated with Lemtrada.
• Family are currently providing care but are resistant to accepting diagnosis. Their focus is on medication and cures rather than other forms of intervention. For example there is no hoist or pressure care.
• GP is involved but appears to be more aligned to the familiar cultural concerns rather than the best interests of the person with MS.

• The AMSC reviewed pressure areas and their management, along with an assessment of current lifestyle and the risks of skin breakdown.
• A referral was placed to a Community Neurological Rehabilitation Team for physiotherapy.
• Education and support was provided to the person with MS, to encourage them to maintain their own mobility and independence, to prevent the need to transfer into a care home.
• Ongoing support is being given to help patient continue with their more proactive regime.

• Hospital admission avoidance.
• Reduced the potential need for the person with MS to move into a care home.