Claire took part in Miles for MS this May to raise money for the MS Trust.
Here she shares why her team 'the Movers & Shakers' got involved to support the MS Trust during lockdown.
I was diagnosed in 2018 with relapsing remitting MS and am trying to take on a challenge every year to do my part and keep active. The 'Movers and Shakers' started with me suggesting it to three friends, then I thought I would extend out to more friends and colleagues and the team expanded to 27 of us! All friends and family, colleagues and friends of friends.
Our original challenge was to walk 334 miles, the circumference of Northern Ireland. As the team grew, we decided to take off from Belfast and virtually make our way across Europe, with our final destination as Athens, Greece!
Whilst taking part, I had a bad bout of fatigue which completely floored me for over a week - I was completely housebound. The team got me through and told me to rest up and recover and they would pick the miles up for me.
It meant the world to me to have their support.
I so enjoyed the team aspect, this is a wide group of people, across North and South of Ireland and Wales and England. We had a Facebook group to chat and keep everyone updated. I tracked our progress on a map and posted Google earth images of where we were each day. It kept us all motivated and was as close to going on a holiday as we could get.
To anyone thinking about taking part in Miles for MS, I would say DO IT!
I have absolutely loved it. I think recruiting or joining a team is a brilliant idea, it kept me so much more motivated. Everyone in my team loved it and we are planning on making it an annual event.
Everyone at the MS Trust would like to thank all our Miles for MS stars for covering an amazing 19,000 miles together and for raising a fantastic amount for the MS Trust!
Updated NICE multiple sclerosis guideline contains some good news and some bad news
22/06/2022 - 00:00
There are some positive points in the revised 2022 guideline but the MS Trust is disappointed that NICE has been unable to recommend Fampyra.
Connors letter to MS
21/06/2022 - 00:00
In 2022, Connor will be taking part in the Great North Run to support the MS Trust. Here, Connor writes a letter to MS, openly sharing his thoughts on the condition his sister was diagnosed with at the age of 14.
Why is Pride month important to the MS Trust?
16/06/2022 - 00:00
As part of our Pride month celebrations, two of the MS Trust team who identify as members of the LGBTQ+ community, sat down with David Martin, the MS Trust’s CEO, to discuss the importance of celebrating the LGBTQ+ community - not just in June but throughout the year.
Sign up for updates from us
Keep up-to-date with the latest MS news, explore new research, read the stories of people living with MS, find out practical tips from MS experts, and discover exciting fundraising opportunities.