Specialist Nurse Programme
The MS Trust is funding and supporting MS specialist nurses, helping the people with MS who live in areas without enough MS nurses.
3 minute read
Working as an MS specialist nurse (MSSN) or Therapist is challenging and many MS specialists are over-stretched.
To help MSSNs and Allied Health Professionals (AHPs) make the case for more staff, we’ve created a toolkit, including a capacity planning tool, a guide to writing a strong business case, a list of the sort of data you might aim to collect and a standard Band 6/7 MSSN Job Description.
As part of our innovative GEMSS (Generating Evidence in MS Services) programme, we convened an expert consensus group to develop a view about what is a sustainable caseload for MS specialist nurses. The results are described in our report MS Specialist Nursing in the UK.
The consensus group found that for an MS specialist nurse with a mixed caseload, and not in an exceptionally rural area, a caseload of 315 people with MS is sustainable. There are a number of conditions which need to be met for this to be achieved, one of the most important is that every whole time equivalent (WTE) MS nurse should be supported by an administrator/coordinator role. (We recommend 0.6 WTE administrative staff for each full time specialist nurse).
Evaluating the current capacity of your service and how your service uses resources is a useful exercise, and is helpful if you do decide to develop a business case. Taking some time out from the overwhelming pressure of a busy caseload to reflect on how you might work smarter, not harder, can be really valuable. With this in mind, the MS Trust has created a capacity planning tool (PDF, 965KB) to help MS nurse teams plan their time and resources more effectively.
The guide takes you through the process of reviewing and modelling your capacity step by step but do contact hpteam@mstrust.org.uk if you would like some help.
In 2016 we created a checklist summarising the MS Trust’s view of a high quality MS nurse service, based on the work of the GEMSS programme. This highlights a number of important measures of an effective, efficient and sustainable MS service, which you can use to evaluate your own service, such as:
The MS Trust’s 2018 mapping access to MS nursing across the UK work showed that almost two thirds of people with MS in the UK live in areas where MS nurses have caseloads in excess of the MS Trust sustainable caseload figure. Nearly 25% live in areas where caseloads are more than twice the sustainable level.
If that’s the case for your service, you may want to consider submitting a business case within your organisation for additional staff.
The MS Trust has created a guide to creating a strong business case (PDF, 1.1MB), providing practical advice on writing an effective and engaging case for your service. The guide takes you through the process of writing a business case step by step, but this will be different for every service and every post. If you would like to discuss with the MS Trust Health Professionals Programme Team or would like some help with this, please do get in touch.
(outlined in full in the business case guide)
A case study provides a close up and in-depth look at how a real world situation has unfolded and the range of factors that contribute to this. In the context of MS services, we can use case studies to illustrate the role and impact of the service on people using it. We can also use case studies to explain how an MS Health Professional works with others and undertakes service development in order to better meet the needs of people with MS.
In case studies we are generally seeking to attribute a positive change that has taken place to the work that an MS Health Professional has done and therefore want to describe the circumstances before the intervention, what the Health Professional did and the impact that this had. Case studies can also be used to illustrate the complexity and challenge of a situation in which there was not a positive impact but where important lessons were learned.
Case studies often sit alongside a suite of evidence to demonstrate the value of a service or individual’s actions. They bring data sets or descriptions of processes to life. Case studies may be used as standalone documents, or as part of wider reports or business cases.
Read our top tips for writing a strong case study (PDF, 215KB).
If so, we would love to hear from you. If your team, or a team you know of, has a model of working to contribute to this resource, please download and complete our template for models of innovative practice form (DOC, 102KB) and email it to hpteam@mstrust.org.uk. Alternatively, feel free to give us a ring on 01462 476726 – we'll ask some questions and then write up your case study for you.
If you would like more information about any particular example listed below, please contact hpteam@mstrust.org.uk.