18 November 2024
Life changing: getting around with MS
The MS Trust have released a new report, Life changing: getting around with MS, which highlights the travel and transport challenges faced by people with MS.
The symptoms of MS can sometimes interfere with your daily life and make previously straightforward tasks more challenging. The right tools or equipment can help you overcome some of those barriers.
Here, we look at what may be available and how equipment may help you with performing daily tasks, getting around or continuing with work, hobbies and pastimes.
In most cases, you'll need to speak to a health or social care professional first. An occupational therapist can assess your home or workplace and can make recommendations for useful equipment that may benefit you to support you with everyday life. You could also speak to your MS nurse, your GP or a physiotherapist about your needs. They may be able to refer you for specialist support.
As a person living with MS, you may be entitled to free disability equipment or small home adaptations which can be supplied by your local council. Aids and adaptations costing less than a thousand pounds (such as handrails and furniture raisers) will be provided by the local adult social care services. These independent living aids will likely be provided free if you are in England or Scotland but if you are in Wales or Northern Ireland there may be a charge.
If you think you could benefit from some specialised equipment or other help at home, start by requesting a free care needs assessment from the social services department of your local council.
The links on this page can help you find information and advice on choosing the right equipment to help and support your situation and your personal preferences as well as where to look and who to speak to.
For larger home adaptations to make life easier, such as having a doorway widened or a wet room installed, there may be financial help available to meet the costs. You may be entitled to a Disabled Facilities Grant, which would help you pay for these adaptations. You can read about this grant and other agencies that can help in our webpage on housing adaptations.
MS symptoms such as balance problems, muscle stiffness or weakness, fatigue and pain can make walking difficult. Using a mobility aid can give you back your freedom to get around independently. From a walking stick to a full powered wheelchair, there are a range of solutions for all levels of ability. In all cases, getting a needs assessment from an occupational therapist is recommended, to make sure you have the right mobility aid for you.
You can speak to a GP, your MS nurse, physiotherapist or hospital staff about obtaining a walking aid. You might have to pay a small deposit. You can buy walking sticks online or from mobility shops and you can search online for mobility shops in your area.
The most common types of walking aids that may benefit people living with MS are:
The following professionals and organisations can help you find information and advice on choosing the right equipment for your situation and your personal preferences.
Disability Living Centres and Independent Living Centres are local services that offer a display of equipment that you can try out as well as information about what is available to help you. They are listed in our map of MS services.
RIDC is an independent research charity that publishes practical and unbiased guides on a range of household and mobility items for people with a disability.
Occupational therapy aims to help people continue to live life as fully as possible by making suggestions for changes in lifestyle, or useful equipment and adaptations. Initially, a GP or neurologist can refer you to an occupational therapy service. Some OTs work outside health and social services, so they may have a shorter waiting list but will charge for their services.
Here are a few organisations that provide adapted and accessible equipment for the home and for getting out and about. You'll find rental schemes as well as options to purchase equipment.
If you join a club for a particular sport such as sailing or bowls, the club leaders will be able to direct you to equipment that can make it easier for you to take part. For example, modified walking frames to allow you to walk on a bowling green without leaving holes in the turf, or buoyancy aids that you can easily get on and off.
The following organisations also sell or compare sports and leisure equipment for those with mobility or dexterity problems, or other disabilities. They include everything from scissors with a comfortable grip and large format playing cards through to hand-propelled tricycles.
Here are a few organisations that provide clothing that has been adapted for people with dressing difficulties, or those who habitually use a wheelchair. An article in the Guardian newspaper drew attention to a number of mainstream designers who are also now designing clothes for a seated position, with waistbands that don't ride up, and tops cut shorter at the back so they don't bunch uncomfortably.