It was a fresh, spring day in 2017 when my world began to shift.
The blurry vision I’d been experiencing wasn’t merely fatigue – it was optic neuritis, the first clear sign of what would later be diagnosed as multiple sclerosis. By autumn, at 39, I found myself navigating a complex new reality.
What I didn’t realise then was that I was grappling with two significant health transitions simultaneously. The MS brought a host of symptoms: debilitating fatigue, muscle spasticity, and bewildering sensory changes. But there was more at play than just the MS.
As I approached my 40s, I began experiencing hot flushes. Initially, I attributed them to stress. Little did I know, these were the first signs of early menopause, triggered by surgery I’d had at 20 to remove my left ovary and fallopian tube. The doctors’ warning that I “might experience menopause earlier than most” had long faded from memory, but now it was becoming my reality.
The challenge?
The fatigue – was it MS-related or hormonal changes? The brain fog – was it cognitive MS symptoms or 'menopause mind'? Even the muscle weakness and balance problems could be attributed to either condition.
This symptomatic crossover made it incredibly difficult to get a clear picture of what was happening in my body. When I reported increased fatigue or mood swings to my neurologist, they were often attributed to MS progression. When I mentioned hot flushes to my GP, I was told I was “too young” for menopause.
In 2022, I began taking Tecfidera for my MS. While it positively impacted my MS symptoms, it added another layer of complexity to my health puzzle. Tecfidera can cause side effects like flushing and gastrointestinal issues – symptoms that eerily mirror some menopausal experiences.
This medication conundrum highlighted a crucial aspect of managing multiple health conditions: the intricate dance between symptoms, side effects, and overlapping conditions. It became clear that treating one aspect of my health could inadvertently muddy the waters in another area.
For years, I meticulously documented my symptoms, determined to advocate for myself. Yet at every turn, I encountered dismissal. “It’s likely just your MS,” one doctor proposed. “You’re overweight. Shed some pounds, and you’ll feel better,” another suggested, completely overlooking the complexity of my situation.
Despite the physical challenges, he’s remained steadfast in his support.
In October 2023, seeking to regain some control, I joined a gym. They have a joint pain program, which focuses on strength, balance and stability. It really gave me a newfound confidence and more energy.
Finally, in 2024, a breakthrough occurred. I found a GP who genuinely listened. After years of struggling to be heard, someone at last took my concerns seriously. With this GP’s guidance, I started hormone replacement therapy (HRT), ushering in a new chapter in my health journey.
Today, at 46, I won’t pretend it’s all smooth sailing. MS, menopause, and medication side effects remain significant parts of my daily life, often intertwining in confusing ways. However, I’ve learned to navigate these choppy waters with greater confidence.
To others grappling with MS, menopause, or both – know that you’re not alone. The overlap in symptoms and side effects can make diagnosis and management challenging, but don’t give up. Keep advocating for yourself, keep detailed records of your symptoms, and don’t be afraid to seek second opinions.
It’s okay to feel frustrated and to have difficult days. But also recognise that there are ways to reclaim control and find strength in unexpected places.
My journey is far from concluded, but I no longer fear the path ahead. Instead, I’m intrigued to see where it leads, and what new strengths I will uncover along the way.
