Out and about – how I tackle public transport with MS

Travelling on public transport with MS can feel daunting. I certainly know that getting around can be challenging at the best of times, especially when we’re already dealing with the likes of mobility issues, fatigue, balance problems or cog-fog.

So, I’ve outlined some practical strategies that I use for planning trips on public transport. Whilst I know I can’t wave a magic wand and make travelling better for us all, I hope you’ll still find them helpful.

Being prepared is crucial when using public transport. Here’s a few things that I try to do to help things go smoothly.

Use MS-friendly travel apps: Many travel apps offer features tailored to people with mobility issues, like highlighting accessible routes, wheelchair access on trains, and the availability of amenities like elevators and ramps. Just search online for what's available in your area. Here’s a couple that I personally recommend:

Citymapper

• Provides step-by-step route planning.
• Features accessibility options, showing step free routes.
• Displays estimated travel times and alternative routes.

Transport for London (TfL) Go

• Live tube and bus updates.
• Journey planning with accessible route options.
• Includes an offline London Underground map.

These apps often show nearby toilets and real-time arrival updates. By identifying accessible routes in advance, you can reduce stress and increase your sense of control over the journey.

Please note - the apps recommended are based on Amanda's personal experiences.

Consider your energy levels: Managing my energy is always a priority, as fatigue can make even short trips exhausting. Plan outings when you’re likely to have more energy and avoid rush hours if possible.

There’s nothing worse than hitting a packed train for my fatigue! Keeping in check with your energy levels can make a big difference in the experience.

Pack comfort essentials: The right essentials can make travel more comfortable. Pack anything that you might need, like a folding cane, cooling vest, or other tools to manage temperature sensitivity or mobility issues. 

Here’s my list of items that I like to keep close:

• Cooling items for hot weather, like a cooling towel, hand fan.
• Pain relief medication.
• Mobility aids, such as a collapsible walking stick.
• Water bottle.
• Snacks like energy bars or quick nutrition supplements.
• Noise-cancelling headphones to help manage my sensory overload.

Many public transport systems offer a range of accessibility features, but knowing how to make the most of them can improve your travel experience. Here’s what I try to do:

Take advantage of priority seating: Ok, this might be an obvious one, but I can often forget if I’m boarding a busy bus or train. Look for designated priority seating areas, typically near entrances and reserved for people with disabilities. Don’t hesitate to ask for help from staff if you need assistance securing a seat – it is their job after all. 

Having a designated place to sit can make the journey much more comfortable, especially during longer trips. In theory, you should be able to get off the vehicle more easily too.

Use accessibility booths and ramps: Many transport systems now include wheelchair-friendly booths, ramps, and elevators. Yep, I know often they’re out of service – the joys of public transport, right? You can request the “kneeling” feature on buses, which lowers the bus floor to make boarding easier. These features are designed for our convenience and safety, so don’t hesitate to use them.

Coping with unplanned challenges: Even the best-laid plans can be disrupted. 
 

Here are some ways I stay calm and manage unexpected situations:

Take breaks: If symptoms or crowds overwhelm you, like me, seek a quiet resting spot. Keep snacks and water with you for your energy levels and carry any medications in case of unexpected delays.

Don’t be afraid to ask for help: Transport staff are (in theory) trained to assist us, so don’t be afraid to let them know your needs. Often they can help by directing you to a quieter area, providing a more comfortable seating option, or just offering guidance to help make the journey smoother.

Have a backup plan: Preparing for unexpected changes can provide peace of mind.

If you need assistance, keep contact information for family or family with you. Having a plan B can help ease stress and ensure you have the support you need if the journey takes longer than anticipated. 

Read Amanda's blog on travelling and more of her work at MS Voices.

• Listen to our podcast on public transport
• Information on public transport and MS
• Information on driving and MS

• Citymapper app
• Transport For London (TFL) Go app