25 October - 1 November 2019
These are links to news stories about multiple sclerosis from the last week that may be of interest to people affected by MS in the UK. The link beneath each item will take you to the original story.
Please note that the MS Trust did not write the original items and does not endorse their content nor any claims made in them.
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New recommendations for Lemtrada
Lemtrada should only used in highly active MS that hasn't been controlled by another disease modifying drug or where MS is worsening rapidly. These are the recommendations of a European Medicines Agency (EMA) committee which has been a safety review of Lemtrada since April. It is also recommended that the drug isn't used in people with heart or bleeding disorders or who have another autoimmune condition
MS Trust link: Lemtrada (alemtuzumab)
Stem cells treatment approved in Scotland
Haematopoietic stem cell transplantation (HSCT) can be considered an option for people in Scotland with relapsing remitting MS and who haven't done well on a disease modifying drug, according to an appraisal by the Scottish Health Technologies Group (SHTG). HSCT is not currently available for MS at any NHS hospitals in Scotland, though this ruling could allow referral to the two centres in England
Source: Herald Scotland
MS Trust link: Stem cell treatment
Causes and protection for cognitive symptoms
Factors that suggested poorer memory and thinking symptoms in someone with MS were older age and lower IQ, according to an Italian study. Older age at diagnosis and progressive MS were also associated with worse cognition while a higher level of activity when a child and HRT in women with MS tended to link with a better outcome
Source: MS News Today
MS Trust link: Thinking and memory problems
Infection risk is higher for people with MS
Some people with MS tend to have lower resistance to infections regardless of whether they take a disease modifying drug, according to Swiss/Greek research. About one in seven people had lower than normal levels of immunoglobulin G (IgG). People with secondary progressive MS had the lowest levels
Source: MS News Today
MS Trust link: MS research updates
Vumerity approved in the USA
The FDA, the US drug regulator, has approved Vumerity (diroximel fumarate) as a treatment for relapsing MS. The drug is similar to Tecfidera but with fewer gastrointestinal side effects. The approval process in Europe hasn't started yet
MS Trust link: Vumerity (diroximel fumarate)
Creating my MS support group helped bring over 600 people together
30 Jul 2021 - 00:00
Amy Thompson, Founder of MS Together, talks about what led her to set up the group and how it has led to new friendships this World Friendship Day.
With a little help from my furry friend
21 Jul 2021 - 00:00
Lisa, who was diagnosed with MS in 2008 tells us about how creativity and a little help from Spud the hamster helped her get through tougher times.
People with MS thoughts on freedom day
19 Jul 2021 - 00:00
From Monday the 19th of July, most covid restrictions have been lifted in England but what are people with MS really feeling about the so called "Freedom day"?
In this article we talk to some people with MS about their feelings, plus we cover what you can do if you are worried about the lifting of restrictions.
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