4 - 10 May 2019
These are links to news stories about multiple sclerosis from the last week that may be of interest to people affected by MS in the UK. The link beneath each item will take you to the original story.
Please note that the MS Trust did not write the original items and does not endorse their content nor any claims made in them.
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Ocrevus approved for PPMS
The first disease modifying drug for people with primary progressive MS in England has been approved by NICE. Ocrevus (ocrelizumab) will be available for prescription for people with early, inflammatory primary progressive MS. Talks are underway about availability in the rest of the UK.
MS Trust link: Good news! NICE approves Ocrevus (ocrelizumab) for primary progressive MS (includes the eligibility criteria for the drug)
Lack of services for people with advanced MS
David Martin of the MS Trust talks about the injustice of the two tier system for people with MS, where people who are eligible for a disease modifying drug are more likely to get a good service than those who aren't. He discussed the Advance MS Champions project that is trying to start to address this problem
MS Trust link: Advanced MS Champions
With a little help from my furry friend
21 Jul 2021 - 00:00
Lisa, who was diagnosed with MS in 2008 tells us about how creativity and a little help from Spud the hamster helped her get through tougher times.
People with MS thoughts on freedom day
19 Jul 2021 - 00:00
From Monday the 19th of July, most covid restrictions have been lifted in England but what are people with MS really feeling about the so called "Freedom day"?
In this article we talk to some people with MS about their feelings, plus we cover what you can do if you are worried about the lifting of restrictions.
Just keep wheeling
14 Jul 2021 - 00:00
Emily, also known as The Wibbly Dinosaur, discusses her feelings on mobility aids and how using a wheelchair provides her with the freedom to continue doing the things she enjoys.
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