4 - 10 May 2019
These are links to news stories about multiple sclerosis from the last week that may be of interest to people affected by MS in the UK. The link beneath each item will take you to the original story.
Please note that the MS Trust did not write the original items and does not endorse their content nor any claims made in them.
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Ocrevus approved for PPMS
The first disease modifying drug for people with primary progressive MS in England has been approved by NICE. Ocrevus (ocrelizumab) will be available for prescription for people with early, inflammatory primary progressive MS. Talks are underway about availability in the rest of the UK.
MS Trust link: Good news! NICE approves Ocrevus (ocrelizumab) for primary progressive MS (includes the eligibility criteria for the drug)
Lack of services for people with advanced MS
David Martin of the MS Trust talks about the injustice of the two tier system for people with MS, where people who are eligible for a disease modifying drug are more likely to get a good service than those who aren't. He discussed the Advance MS Champions project that is trying to start to address this problem
MS Trust link: Advanced MS Champions
The ADAMS project
25/05/2022 - 00:00
Dr Benjamin Jacobs spoke to us about a new study on the genetics of MS in people from minority ethnic backgrounds which may eventually shed light on why MS can be more severe for Black and Asian people.
Roxy's journey to diagnosis
16/05/2022 - 00:00
Roxy talks about her MS journey and the importance of sharing her own experiences to ensure that others don’t face the same challenges when receiving a diagnosis.
Lis' MS journey: one woman and her bike
04/05/2022 - 00:00
In May 2022, Lis will be heading off on her 5,000 mile cycling challenge. She shares how the idea came about and discusses why the support of the MS Trust was invaluable following a multiple sclerosis diagnosis.
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