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MS in the Media - 12 July 2019

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  1. Poor experiences require national plan for neurology
  2. Regular standing helps symptoms
  3. Stem cell successes
  4. Breath test may spot MS
  5. Gadolinium doesn't affect health
  6. Opicinumab trial unsuccessful

6 - 12 July 2019

These are links to news stories about multiple sclerosis from the last week that may be of interest to people affected by MS in the UK. The link beneath each item will take you to the original story.

Please note that the MS Trust did not write the original items and does not endorse their content nor any claims made in them.

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Poor experiences require national plan for neurology

People in England with neurological conditions are facing long waiting times, poor access to specialists and a lack of personalised care, according to a report/survey by the Neurological Alliance. They call for a National Plan for Neurology and suggest people write to their MPs

Source: Neurological Alliance

MS Trust link: Call for national neurology plan following largest ever survey of people with neurological conditions - MS Trust news item

Regular standing helps symptoms

Regular standing in a frame helps people with advanced MS with balance and movement, according to UK research. The story includes a man who says using the frame helped him be able to walk his daughter down the aisle at her wedding

Source: BBC

MS Trust link: Posture and MS

Stem cell successes

Two women have both done well after treatment with stem cells transplants.

Source: Daily Mail

MS Trust link: Stem cell treatment

Breath test may spot MS

Researchers are exploring whether analysing molecules that people exhale might lead to a potential breath test for diagnosing MS.

Source: MS News Today

MS Trust link: MS research updates

Gadolinium doesn't affect health

The contrast agent used in MRI scans does accumulate in the brain but doesn't seem to affect health over the first five years with MS, according to US research

Source: University of Buffalo

MS Trust link: Magnetic resonance imaging (MRI)

Opicinumab trial unsuccessful

A trial comparing people taking Avonex (interferon beta 1a) with or without opicinumab (anti-LINGO-1) failed to show an effect on walking and upper limb coordination.  Another study, already fully recruited, is starting focussing on people within 20 years of onset - a subgroup who seemed to do best in the original trial.

Source: National MS Society (USA)

MS Trust link: Drugs in development

 

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