MS in the Media - 12 July 2019
6 - 12 July 2019
These are links to news stories about multiple sclerosis from the last week that may be of interest to people affected by MS in the UK. The link beneath each item will take you to the original story.
Please note that the MS Trust did not write the original items and does not endorse their content nor any claims made in them.
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Poor experiences require national plan for neurology
People in England with neurological conditions are facing long waiting times, poor access to specialists and a lack of personalised care, according to a report/survey by the Neurological Alliance. They call for a National Plan for Neurology and suggest people write to their MPs
Source: Neurological Alliance
MS Trust link: Call for national neurology plan following largest ever survey of people with neurological conditions - MS Trust news item
Regular standing helps symptoms
Regular standing in a frame helps people with advanced MS with balance and movement, according to UK research. The story includes a man who says using the frame helped him be able to walk his daughter down the aisle at her wedding
Source: BBC
MS Trust link: Posture and MS
Stem cell successes
Two women have both done well after treatment with stem cells transplants.
Source: Daily Mail
MS Trust link: Stem cell treatment
Breath test may spot MS
Researchers are exploring whether analysing molecules that people exhale might lead to a potential breath test for diagnosing MS.
Source: MS News Today
MS Trust link: MS research updates
Gadolinium doesn't affect health
The contrast agent used in MRI scans does accumulate in the brain but doesn't seem to affect health over the first five years with MS, according to US research
Source: University of Buffalo
MS Trust link: Magnetic resonance imaging (MRI)
Opicinumab trial unsuccessful
A trial comparing people taking Avonex (interferon beta 1a) with or without opicinumab (anti-LINGO-1) failed to show an effect on walking and upper limb coordination. Another study, already fully recruited, is starting focussing on people within 20 years of onset - a subgroup who seemed to do best in the original trial.
Source: National MS Society (USA)
MS Trust link: Drugs in development
My search for MS support while studying for a PhD
4 Mar 2021 - 00:00
Laura is studying a PhD in Cancer Genomics and was diagnosed with MS in September 2020 following multiple hospital admissions. Here, Laura talks about how this affected her mental health and what more could be done to support other students going through the same thing.
MS, my mental health and a university degree
4 Mar 2021 - 00:00
Scarlet talks about how she learnt to manage her MS and mental health alongside the stresses of completing a university degree.
Receiving an MS diagnosis during my gender transition
22 Feb 2021 - 00:00
Chris shares his experience of being diagnosed with MS at the same time as starting hormone treatment and a surgical gender transition.
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