6 - 12 July 2019
These are links to news stories about multiple sclerosis from the last week that may be of interest to people affected by MS in the UK. The link beneath each item will take you to the original story.
Please note that the MS Trust did not write the original items and does not endorse their content nor any claims made in them.
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Poor experiences require national plan for neurology
People in England with neurological conditions are facing long waiting times, poor access to specialists and a lack of personalised care, according to a report/survey by the Neurological Alliance. They call for a National Plan for Neurology and suggest people write to their MPs
Source: Neurological Alliance
MS Trust link: Call for national neurology plan following largest ever survey of people with neurological conditions - MS Trust news item
Regular standing helps symptoms
Opicinumab trial unsuccessful
A trial comparing people taking Avonex (interferon beta 1a) with or without opicinumab (anti-LINGO-1) failed to show an effect on walking and upper limb coordination. Another study, already fully recruited, is starting focussing on people within 20 years of onset - a subgroup who seemed to do best in the original trial.
Source: National MS Society (USA)
MS Trust link: Drugs in development
My search for MS support while studying for a PhD
4 Mar 2021 - 00:00
Laura is studying a PhD in Cancer Genomics and was diagnosed with MS in September 2020 following multiple hospital admissions. Here, Laura talks about how this affected her mental health and what more could be done to support other students going through the same thing.
MS, my mental health and a university degree
4 Mar 2021 - 00:00
Scarlet talks about how she learnt to manage her MS and mental health alongside the stresses of completing a university degree.
Receiving an MS diagnosis during my gender transition
22 Feb 2021 - 00:00
Chris shares his experience of being diagnosed with MS at the same time as starting hormone treatment and a surgical gender transition.