17 October - 6 November 2020
These are links to recent news stories about multiple sclerosis that may be of interest to people affected by MS in the UK. The link beneath each item will take you to the original story.
Please note that the MS Trust did not write the original items and does not endorse their content nor any claims made in them.
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Biotin trial unsuccessful
Biotin didn't improve functional ability or walking speed in non relapsing progressive MS, according to a phase 3 trial that has been published in the Lancet. There was a small but not significant difference in people showing improvement in disability and walking speed compared to placebo. Previous, smaller trials had suggested the drug might be effective.
MS Trust link: Biotin (MD1003)
Carers fear burnout
Carers UK has warned that unpaid carers are struggling due to the pandemic and services such as day centres being closed. In a survey, around three in five reported their physical and mental health had been affected. Includes case study of a woman who cares for her partner with MS
MS Trust link: Carers
Measures of walking don't tell whole story
There is a gap between clinical measures of walking (such as the 6-Minute Walk Test) and real world measure (such as an activity monitor), according to Canadian research. Clinicians need to be more aware of the implications of day to day activity levels
Source: McGill University
MS Trust link: Walking difficulties
Gene and infection combination increases MS risk
People who have a variant of the HLA-DR15 gene, who are also infected with the Epstein-Barr virus (EBV) and have a symptomatic course of glandular fever (which is caused by EBV) have a 15-fold risk of MS, according to Swiss research. The gut bacterium Akkermansia muciniphila is also implicated as levels are higher in people with MS.
Source: Science Daily
MS Trust link: Epstein-Barr virus (EBV)
With a little help from my furry friend
21 Jul 2021 - 00:00
Lisa, who was diagnosed with MS in 2008 tells us about how creativity and a little help from Spud the hamster helped her get through tougher times.
People with MS thoughts on freedom day
19 Jul 2021 - 00:00
From Monday the 19th of July, most covid restrictions have been lifted in England but what are people with MS really feeling about the so called "Freedom day"?
In this article we talk to some people with MS about their feelings, plus we cover what you can do if you are worried about the lifting of restrictions.
Just keep wheeling
14 Jul 2021 - 00:00
Emily, also known as The Wibbly Dinosaur, discusses her feelings on mobility aids and how using a wheelchair provides her with the freedom to continue doing the things she enjoys.
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