17 October - 6 November 2020
These are links to recent news stories about multiple sclerosis that may be of interest to people affected by MS in the UK. The link beneath each item will take you to the original story.
Please note that the MS Trust did not write the original items and does not endorse their content nor any claims made in them.
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Biotin trial unsuccessful
Biotin didn't improve functional ability or walking speed in non relapsing progressive MS, according to a phase 3 trial that has been published in the Lancet. There was a small but not significant difference in people showing improvement in disability and walking speed compared to placebo. Previous, smaller trials had suggested the drug might be effective.
MS Trust link: Biotin (MD1003)
Carers fear burnout
Carers UK has warned that unpaid carers are struggling due to the pandemic and services such as day centres being closed. In a survey, around three in five reported their physical and mental health had been affected. Includes case study of a woman who cares for her partner with MS
MS Trust link: Carers
Measures of walking don't tell whole story
There is a gap between clinical measures of walking (such as the 6-Minute Walk Test) and real world measure (such as an activity monitor), according to Canadian research. Clinicians need to be more aware of the implications of day to day activity levels
Source: McGill University
MS Trust link: Walking difficulties
Gene and infection combination increases MS risk
People who have a variant of the HLA-DR15 gene, who are also infected with the Epstein-Barr virus (EBV) and have a symptomatic course of glandular fever (which is caused by EBV) have a 15-fold risk of MS, according to Swiss research. The gut bacterium Akkermansia muciniphila is also implicated as levels are higher in people with MS.
Source: Science Daily
MS Trust link: Epstein-Barr virus (EBV)
Move it for MS Nick's story
7 Oct 2021 - 00:00
Nick, was diagnosed with relapsing remitting Multiple Sclerosis at the start of the first lockdown. In this story we talk to him about how he coped with his diagnosis and how running helps him with his MS.
David's diary - Inclusion and diversity, where are we now?
6 Oct 2021 - 00:00
Just over a year ago we published a diary entry about Inclusivity and Diversity at the MS Trust. In this piece we take a look at what's changed since then and what we still need to do.
Flu season 2021
4 Oct 2021 - 00:00
This year is likely to involve a bigger flu vaccination programme in the UK, including for people with multiple sclerosis (MS), due to the circulation of Covid-19 at the same time. Here we discuss who's eligible for a flu jab on the NHS and how to get one.
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