MS in the Media - 7 June 2019
1 - 7 June 2019
These are links to news stories about multiple sclerosis from the last week that may be of interest to people affected by MS in the UK. The link beneath each item will take you to the original story.
Please note that the MS Trust did not write the original items and does not endorse their content nor any claims made in them.
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MS progression slower in childhood MS
People diagnosed with MS as a child take longer to reach EDSS milestones but reach them at a younger age than people diagnosed as adults, according to Swedish research.
Source: Neurology Today
MS Trust link: Childhood MS
Genes linked to MS risk identified
Twelve genetic mutations that greatly raise the risk of developing MS have been identified by Canadian research. The genes were identified from a study of people from families that include three of more people with MS. Researchers hope that this may lead to a preventive treatment
Source: Science Daily
MS Trust link: Risk of developing MS
Obesity linked to worse MS
Obesity at diagnosis is associated with a higher EDSS score and more severe symptoms, according to Italian research
Source: Eureka Alert
MS Trust link: Obesity
Better support for neurological conditions needed at work
The Economist has published a report looking at workplace response to neurological conditions, focussing on migraine, MS and Alzheimer's disease. Recommendations include better policies to support staff, better education for staff, better workplace adjustments.
Source: The Economist
MS Trust link: Working life
The crisis in care
The BBC's recent Panorama programme on care included Val Kinge, who has MS, and her husband Alan, who is her main carer. They reflect on the difficulty getting professional care for her
Source: BBC (there's a navigation bar to jump straight to their section)
MS Trust link: Social care
"Starting a podcast in lockdown helped us take ownership of the situation"
23 Apr 2021 - 00:00
Comedian, Jeanette and Poet, Lytisha, talk about how creating their own podcast, about life with MS, led to lots of laughs, feelings of empowerment and a sense of community during lockdown.
Twelve year old Lacey hasn't been able to hug her dad for a year
23 Apr 2021 - 00:00
Before lockdown Lacey visited her dad every other weekend, but Covid restrictions have meant she’s not been able to visit her dad in his care home and give him a hug since March 2020.
'This is my normal now. I rather like it.' Living with PPMS in lockdown
23 Apr 2021 - 00:00
John Peters tells us how his working life changed during lockdown and how he’ll be quite happy not to go back to ‘normal’.
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