"It's OK if it's a shock to you" - people share their experiences of diagnosis with MS
Most people clearly remember their own experience of diagnosis with MS and are keen that others have a smoother ride. In this video people share their experiences.
Whether it was a shock or largely expected, being diagnosed with MS can leave you in a bit of a whirl. Looking back, how did you cope? What could you have done differently and what would you suggest to someone diagnosed today? People with MS have taken part in a series of videos to pass on their experience and offer support to anyone who has recently been diagnosed.
What is your advice to someone who is newly diagnosed with MS?
Suggestions include:
- “Whatever is right for you, you need to do.”
- “Don’t feel pressured by yourself or by anyone else around you.”
- “Don’t scare yourself and just take things one step at a time.”
- “Don’t make snap decisions.”
And some perspectives on diagnosis, now that a bit of time has passed:
- “It’s OK if you’re not OK. It’s OK if it is a shock to you.”
- “Every person’s MS is different.”
- “It’s very much about me. My MS is about me.”


The ADAMS project
25/05/2022 - 00:00
Dr Benjamin Jacobs spoke to us about a new study on the genetics of MS in people from minority ethnic backgrounds which may eventually shed light on why MS can be more severe for Black and Asian people.


Roxy's journey to diagnosis
16/05/2022 - 00:00
Roxy talks about her MS journey and the importance of sharing her own experiences to ensure that others don’t face the same challenges when receiving a diagnosis.


Lis' MS journey: one woman and her bike
04/05/2022 - 00:00
In May 2022, Lis will be heading off on her 5,000 mile cycling challenge. She shares how the idea came about and discusses why the support of the MS Trust was invaluable following a multiple sclerosis diagnosis.

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